Epidermolysis Bullosa http://befriendeb.wordpress.com Making Life Bearable Tue, 19 Feb 2008 21:26:34 +0000 http://wordpress.com/ en hourly 1 http://www.gravatar.com/blavatar/2a2068ded474bc7e7bdf01f30f5e642f?s=96&d=http://s.wordpress.com/i/buttonw-com.png Epidermolysis Bullosa http://befriendeb.wordpress.com A horse? http://befriendeb.wordpress.com/2008/02/19/a-horse/ http://befriendeb.wordpress.com/2008/02/19/a-horse/#comments Tue, 19 Feb 2008 21:26:34 +0000 Cats123xo http://befriendeb.wordpress.com/2008/02/19/a-horse/ ]]>

I don’t know about you but I never heard of an animal having EB, and a horse.  To read this amazing article click below.

http://greenrage.wordpress.com/2008/02/10/inherited-skin-fragility-in-draft-horse-breeds/

]]> http://befriendeb.wordpress.com/2008/02/19/a-horse/feed/ 0 Cats123xo song and dance http://befriendeb.wordpress.com/2008/02/19/song-and-dance/ http://befriendeb.wordpress.com/2008/02/19/song-and-dance/#comments Tue, 19 Feb 2008 21:22:11 +0000 Cats123xo http://befriendeb.wordpress.com/?p=35 ]]>

A 10-year old girl suffers from EB, so a charity group comes together and have a song and dance fundraiser.

http://iccoventry.icnetwork.co.uk/0100news/0150swarksnews/tm_headline=charity-song-and-dance&method=full&objectid=20452011&siteid=50003-name_page.html

]]> http://befriendeb.wordpress.com/2008/02/19/song-and-dance/feed/ 0 Cats123xo Update http://befriendeb.wordpress.com/2008/02/19/update/ http://befriendeb.wordpress.com/2008/02/19/update/#comments Tue, 19 Feb 2008 21:18:18 +0000 Cats123xo http://befriendeb.wordpress.com/?p=34 ]]>

This post is an update about the “TWIN” post.  Both of the two boys that I mentioned did not make it.

http://www.nj.com/news/expresstimes/nj/index.ssf?/base/news-7/1202274343229890.xml&coll=2

]]> http://befriendeb.wordpress.com/2008/02/19/update/feed/ 0 Cats123xo Unbearable http://befriendeb.wordpress.com/2008/02/19/unbearable/ http://befriendeb.wordpress.com/2008/02/19/unbearable/#comments Tue, 19 Feb 2008 21:10:49 +0000 Cats123xo http://befriendeb.wordpress.com/?p=33 ]]>

Eb is an unbearable skin disorder that effect kids and adults.  Click the link below to read about two boys that suffer from EB.

http://www.nj.com/news/expresstimes/nj/index.ssf?/base/news-7/1201669569201450.xml&coll=2

]]> http://befriendeb.wordpress.com/2008/02/19/unbearable/feed/ 0 Cats123xo Twins http://befriendeb.wordpress.com/2008/02/19/twins/ http://befriendeb.wordpress.com/2008/02/19/twins/#comments Tue, 19 Feb 2008 21:04:18 +0000 Cats123xo http://befriendeb.wordpress.com/?p=32 ]]>

Two twin boys were born with EB.  There town comes togther to help there family.  For more information on this family click below.

http://blog.pennlive.com/lehighvalley/2008/01/family_of_babies_with_skin_dis.html

]]> http://befriendeb.wordpress.com/2008/02/19/twins/feed/ 0 Cats123xo EB video http://befriendeb.wordpress.com/2008/02/19/eb-video/ http://befriendeb.wordpress.com/2008/02/19/eb-video/#comments Tue, 19 Feb 2008 20:56:11 +0000 Cats123xo http://befriendeb.wordpress.com/?p=31 ]]>

A new video on hand wrapping.  And also a video on some of the wound care supplies.  To watch them check out this link.

http://dermatology.stanford.edu/gsdc/eb_clinic/eb-videos.html

]]> http://befriendeb.wordpress.com/2008/02/19/eb-video/feed/ 0 Cats123xo A true inspiration http://befriendeb.wordpress.com/2008/02/19/a-true-inspiration/ http://befriendeb.wordpress.com/2008/02/19/a-true-inspiration/#comments Tue, 19 Feb 2008 20:50:50 +0000 Cats123xo http://befriendeb.wordpress.com/?p=30 ]]>

Melissa was a inspiration to her family and friends.  Unfortunately Melissa lost in her battle with EB.  To read more about Melissa check out this link.

http://www.stockportexpress.co.uk/news/s/1031187_brave_melissa_was_a_true_inspiration_

]]> http://befriendeb.wordpress.com/2008/02/19/a-true-inspiration/feed/ 0 Cats123xo Tough on the inside http://befriendeb.wordpress.com/2008/02/19/tough-on-the-inside/ http://befriendeb.wordpress.com/2008/02/19/tough-on-the-inside/#comments Tue, 19 Feb 2008 20:42:16 +0000 Cats123xo http://befriendeb.wordpress.com/?p=29 ]]>

A 6 year old girl fights her batles with eb. To read more and help her out click this link.

http://www.centredaily.com/living/story/311682.html

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Over in England a home for people with eb has been bought by charity group.

http://www.thisisdorset.net/display.var.1944870.0.holiday_home_for_skin_disease_sufferers.php

]]> http://befriendeb.wordpress.com/2008/02/19/a-home-for-eb/feed/ 1 Cats123xo Make a Wish http://befriendeb.wordpress.com/2008/02/19/make-a-wish/ http://befriendeb.wordpress.com/2008/02/19/make-a-wish/#comments Tue, 19 Feb 2008 20:25:15 +0000 Cats123xo http://befriendeb.wordpress.com/?p=27 ]]>

When you hear Make a Wish, you think of a trip, shopping spree.  Well, two brothers suffering from eb wished for air conditioning for there house.  Too read more about this amazing wish check out this link.

http://www.wish.org/stories/fantasy/decorating_and_remodeling/juan_and_gilberto_air_conditioner?rss=Make-A-Wish+Recent+Wishes

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